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Showing posts from December, 2007

Kathy's Update cause hers are so much better than mine!

Happy New Year!

We hope everyone had a wonderful Holiday season, a fun and safe New Year's!

Skyler is doing well these days. Everyday he is getting stronger and more back to his normal self. A couple of days he has been able to stay in his chair for up to 5 hours at a time. He lies down for about an hour and right back in his chair and back to controlling things! He woke up the other morning at 5am (Oh Joy!) laughing and giggling about a New Idea he had!! As soon as he was in his chair, he was telling us the script/scene for his next videotaping extravaganza! Since that fateful morning, he has made 2 new DVDs of coordinating things on one of his video tapes (usually news shows or home movies) with one of his computer games. They are called "Same Time" and "Same Time 2". He thinks they are GREAT!! (We video tape the scenes he wants, then he and Chris burn it onto a DVD. Quite the project!)

Skyler's appetite is a little better. There were a couple of rough weeks…

Sorry I haven't posted in awhile

Things have been kind of staying the same around here. Skyler continues to spend just a little time in his chair and more time laying down. It will take a long time until he is back to handling a full day sitting up!

It occurred to me that I have pictures of about everything except Skylers temporary hospital bed, which we have squeezed into his room. The reason we need this is because we need to be able to raise him up and down to attach him to the sling and lift. Also, the Hoyer lift can't go under his regular bed because it is a wooden frame with drawers on the bottom, with no room for the legs of the lift to roll under.

So it is tight in his room!

The laugh is back!

I really haven't had much to report these last days with Skyler. We have a routine going now that seems to work, spending as much time as he can tolerate in his wheelchair, then moving to his bed in the living room. So it is back and forth, and get out for an errand every now and then so he can get some fresh air.

He is enjoying himself more, and laughing at his DVDs that he has put together. His latest thing is to watch something on TV at the same time that he has a computer game running. We wheeled his old ancient Mac into the living room for him because it runs a very old bowling game he loves. The sound effects are funny, the bowlers all have lines like "Oooo, tough split", "Those gutters getting too wide for you?", and "Shake it off, shake it off." Silly stuff but he really enjoys it! So it's good to see that laugh back, now if would just sleep... Zzzzzzzz...

Rollin rollin rollin...

Everything we do with Skyler now involves rolling him from side to side. No more picking him up under the arms, or just lifting his pelvis to change him or put on clothes. I'll tell you, this is going to get old fast! He is being a pretty good guy about it all but he is still that same old impatient dude that wants what he wants and now.

We picked up a cot and a different mattress to have him lay on in the living room that the lift can fit under. So we don't have to pick him up the wrong way or risk a drop to get him from his chair onto the floor.



This week was very, very long... I hope he gets to feeling better soon. Mama and Pop need a nights sleep.

That's not a scar...

In my best Crocodile Dundee voice:

Now that's a scar!

Skyler got the outside dressing off from the surgery site today. Now they just let the butterfly strips fall off as they will. The cut actually goes about 3-4 inches farther down.

Home life

Skyler is doing pretty well, having a bit of pain and spasms but we can control that with pain meds and Valium. This biggest issue we have is with moving him and making sure he is comfortable. He can handle about an hour in his wheelchair and hen wants to get out and be on the floor to stretch out. So this means a lot of coordination and lifts, which means we both need to be here most of the time to handle him!

So we are lucky that I can work from home, and I have a lot of really good people and an understanding boss I work with.

Here is Skyler getting transfered in the Hoyer lift:




Here is is chilling on the floor watching a DVD:



His G-Tube continues to leak so we are heading back to the doc today to have them look at that. It probably needs to be replaced, but that isn't much of a deal.

Sunday Afternoon

Update from Kathy:

So, I'm wondering... is it midnight yet?!?!?
It has been a long day of figuring things out for us. Skyler had a pretty good night last night. He was awake early wondering where his 20" flat screen TV with CNN Headline News was???

Skyler got up wanting to do all of his usual Sunday activities and was very frustrated because he just didn't feel well enough to do them and the control on his arm was still weak. He is a little disappointed with Chris and I and how long it takes us to transfer him and get him set up. Mr. Patience! NOT!!! We are getting better at it. I think we will rent a reclining wheelchair so Skyler can lay back and relax without going to his room. He wanted us to roll the hospital bed out to the family room every day for him... Uh, No. He has been in his chair a lot today, and, Drum Roll Please...
He is using his left hand to run the DVD/VCR with his DynaVox!! Ahh... Big Sigh of Relief. We had to raise his talker up because he is t…

We are home!

Skyler came home late Saturday evening! He cleared all of the requirements for coming home, so out the door we went! Skyler was ready to be home. He had been very moany, groany all day until the nurse said that he was free to go. Kathy and I were cleared on the 2 person lift and the rest of his care.

It was little bit of a fire drill getting out of there, it always seems to be that way when we check out of the hospital. They called in pills for his pain meds instead of liquid to King Soopers pharmacy. Stupid Resident... The pharmacist was great at KS. I called the hospital for a new prescription and she stayed 10 minutes late so we could pick it up.

Skyler is tucked into bed. He was very, very tired. He came home and tried to do all the things he usually does but was too tired to do it. He is using his left arm better, but his fingers are still weak. He is frustrated with it but we will keep working on it and hopefully it will get better in the next few days.

The week has …

Saturday through midday

Skyler is more than ready to go home!! He has been a little crabby this morning... even with Holiday Singers outside his room! Don't even try to make me happy!!!



We washed his hair with shampoo in his bed with a couple of towels and a plastic trash bag. It worked well.



He is in his chair and he used his left hand a little to run his DVD!! YEA! Made my day!! He is still very weak and not as motivated as usual. But it is a step in the right direction. He moved his legs today also. That is the first time he has moved them since the surgery. He is making progress today because he is really DONE with being in the hospital!!


He is off of oxygen right now. He needs it when he has had his pain meds and at night. We will work on that today and hopefully go home without oxygen. The Pulse-Ox below rules our life right now. 92 on the left is his O2 level (90-100 is where he needs to be) . 118 on the right is his pulse rate.



We have been cleared to go home by the ortho department. I think if we …